An ACPE Academy Webinar
of Grief and Loss in the Lives of People with Intellectual and
Developmental Disabilities and Pastoral Strategies for Addressing Them
Presenter(s): Bill Gaventa and Meggie Kobb
Presented on: May 10, 2016
Resources for Webinar:
Click here to watch the webinar
Click here for the powerpoint slides
This webinar is one of a three part series which includes titles, “An Introduction to Understanding of Models of Disability and Terminology,” “Dimensions of Grief and Loss in the Lives of People with Intellectual and Developmental Disabilities and Pastoral Strategies for Addressing Them,” and “Pastoral Care and Advocacy Beyond the Hospital Walls.”
Do You Really See Me? "See me! Touch me! Feel me!" sang Tommy in the great rock musical by the Who. Intellectual and developmental disabilities are a diagnostic category but not an illness or disease. People with labels such as cerebral palsy, autism and intellectual disability also get sick and deal with other life threatening diseases. However, they and their families and/or caregivers often experience typical acute care hospitals as risky and dangerous places because of assumptions about disability, issues in communication, and judgments about quality of life, grief, and loss. Pastoral caregivers thus have the opportunity to combine sensitive care of individuals, families, and staff with advocacy that addresses stereotypes, assumptions, and gaps in their care and support.
Bill Gaventa, Director, Summer Institute on Theology and Disability and Collaborative on Faith and Disability, has spent his pastoral/chaplaincy career working in both institutional and community settings that serve and support people with intellectual and developmental disabilities and their families. He is a CPE Supervisor, now on retired status.
Meggie Kobb, Staff Chaplain at the Hospital of the University of Pennsylvania who covers the Emergency Department, ED Observation Unit, and the Psychiatric Emergency Evaluation Center. She did a CPE residency at Penn, and, as the proud mother of a ten year old son on the autism spectrum, has used both her training and experience as chaplain with people with intellectual and developmental disabilities.